Discovery is driven by researchers examining patient data + correlating patient-reported symptom data with biological + genetic aberrations. The larger the data set available, the higher the probability that meaningful discoveries can be made.
We created the You + ME Registry + Biobank to help researchers uncover possible causes + treatments of ME/CFS, Long Covid + other post-viral illnesses. Researchers who want to use the data, the biospecimens or both can submit an application, which will be reviewed by the Registry Community Advisory Committee.
Researchers who use the data are required to share their methods + findings with the community to allow others to build on their discoveries.
Discover our latest news on our blog.
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You + ME Community
You + ME | ME/CFS
You + ME | COVID
You + ME | Australia
You + ME | Control