Discovery is driven by researchers examining patient data and correlating patient reported symptom data with biological and genetic aberrations. The larger the data set available, the higher the probability that meaningful discoveries can be made. We created the You + ME Registry and Biobank for researchers like you to uncover possible causes and treatments of ME/CFS and post-viral illnesses like long-COVID. Researchers who want to use the data, the biospecimens, or both will submit an application to Solve M.E. The application will be reviewed by the Registry Community Advisory Committee.
Researchers who use the data will be required to share their methods and findings back with the community to allow others to build on their discoveries.
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You + ME Community