How we’re leveraging the You + M.E. Registry to Study COVID-19

While COVID-19 has changed where we work, it has not stopped how hard we work on behalf of the ME/CFS community. Following several months of development, user testing and partnership with the community, we are fast approaching the launch of the You + M.E. Registry!

 

I’ve received several inquiries and thoughts regarding approaches to track both the impact of COVID-19 on people with ME/CFS and the development of ME/CFS-like symptoms following COVID-19 exposure. I believe the You + M.E. Registry is well-suited to be leveraged in this effort. Here’s what we’re planning:

 

1. We’ve integrated a COVID-19 questionnaire in the You + M.E. survey dashboard so that we can track the impact of COVID-19 on the health of people with pre-existing ME/CFS.
 

 
2. We’ve initiated partnerships with established COVID-19 registries and apps to include questions that ask participants whether they have developed post-viral ME/CFS-like symptoms. If they answer yes, they will be referred to You + M.E. so they can provide more comprehensive information.

 

We believe the combination of these two actions will enhance our collective understanding of the short and long-term impacts of COVID-19.
 
—Sadie Whittaker, PhD

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