We Believe in Community
Finding a cure for ME/CFS will take much more than one single person. Every member of the You + ME community plays a critical role. We want to hear from you if you have ideas on how to improve our registry or if you have an idea for a research study using the data.
For our part, we are committed to sharing back updates on the progress of the registry and how the data are being used in research.
We Insist on Progress
Difficult problems are made easier to solve if we have enough information to see the whole picture. Collecting as much information as possible about ME/CFS via the registry is half of the story. The other half is ensuring that researchers are using the data to advance our understanding of the disease.
We will actively cultivate research ideas and create funding opportunities that will drive progress.
We Empower with Information
Tracking how you feel each day can help you feel empowered about your health and how it is impacted by your day-to-day activities. We also know it’s easier to talk to your healthcare team or loved ones about the impact of ME/CFS if you have information to share about your symptoms.
We want to make it as easy as possible for you to record this information and be able to see and share it with others.
We Amplify with Collaboration
When we work together, nothing is impossible. We will amplify the impact of You + ME by collaborating with an international network of partners who are also collecting ME/CFS patient data.
By joining forces, we will create the largest possible collection of information about this disease.