Finding a cure for complex illnesses like ME/CFS + Long Covid will take much more than one single person. Every member of the You + ME community plays a critical role. We want to hear from you if you have ideas on how to improve our registry or if you have an idea for a research study using the data.
We are committed to sharing updates on the progress of the registry + how the data are being used in research.
Difficult problems are easier to solve if we have enough information to see the whole picture. Collecting as much data as possible about ME/CFS, Long Covid + other post-viral illnesses is only half of the story. The other half is ensuring that researchers are using the data to advance our understanding of these diseases.
We will actively cultivate research ideas + create funding opportunities that drive progress.
Tracking how you feel each day can equip you with the knowledge of how your day-to-day activities impact your health. We also know it’s easier to talk to your healthcare team or loved ones about the impact of ME/CFS or Long Covid if you have data about your symptoms to share.
We want to make it as easy as possible for you to record this information + be able to see and share it with others.
When we work together, nothing is impossible. We amplify the impact of You + ME by collaborating with an international network of partners who are also collecting data on ME/CFS + Long Covid.
By joining forces, we will create the largest possible collection of information about these diseases.