Finding a cure for complex illnesses like ME/CFS and long-COVID will take much more than one single person. Every member of the You + ME community plays a critical role. We want to hear from you if you have ideas on how to improve our registry or if you have an idea for a research study using the data.
For our part, we are committed to sharing back updates on the progress of the registry and how the data are being used in research.
Difficult problems are easier to solve if we have enough information to see the whole picture. Collecting as much data as possible about ME/CFS and post-viral chronic illnesses like long-COVID is only half of the story. The other half is ensuring that researchers are using the data to advance our understanding of these diseases.
We will actively cultivate research ideas and create funding opportunities that will drive progress.
Tracking how you feel each day can equip you with the knowledge of how your day-to-day activities impact your health. We also know it’s easier to talk to your healthcare team or loved ones about the impact of ME/CFS or long-COVID if you have data to share about your symptoms.
We want to make it as easy as possible for you to record this information and be able to see and share it with others.
When we work together, nothing is impossible. We will amplify the impact of You + ME by collaborating with an international network of partners who are also collecting data on ME/CFS and long-COVID.
By joining forces, we will create the largest possible collection of information about these diseases.