Long Covid Webinar Series

Some people never recovered from Covid-19 and patient-led groups and academics are now studying Long Covid. How do we consolidate and share what we know so we can uncover causes and treatments more rapidly? Collaboration begins with conversation. Moderated by Sadie Whittaker, our chief scientific officer and a You + ME Registry architect, this three-part series brings together those collecting data on Long Covid to share preliminary findings and answer questions from our virtual audience.

Please click here for recording of Session I with Dr. Nisreen Alwan and Dr. Natalie Lambert on July 1 and here  for Session II with Dr. Bhupesh Prusty on September 20.

Session III–Long Covid: What Do We Know So Far?
October 19, 2021
1pm ET/10am PT
Please register here.

Dr. Jillian Jaycox
Yale University School of Medicine

Dr. Carmen Scheibenbogen
Professor for Immunology Deputy Chair, Institute of Medical Immunology
University Hospital Charité

Dr. Scheibenbogen’s research focuses on the role of Epstein-Barr virus (EBV), particularly the characterization of EBV specific B cell and T cell response and the enhanced antibody response against EBV peptides ME versus healthy controls. She also leads the Biomarkers Working Group of EUROMENE, a non-profit organization committed to tackling the cause and treatment for ME.

Dr. Scheibenbogen received two Ramsay Awards from Solve M.E. A 2016 Ramsay Award, shared with Dr. Madlen Lobel, supported her research comparing autoimmune genetic and cellular traits in ME patients and a 2017 Ramsay Award, shared with Dr. Franziska Sotzny, for a study of immunometabolism of T cells and monocytes in ME.

She helped create the CellTrend Diagnostic Test, which may help identify a subset of 20-30% of all patients with ME, and she has published more than a dozen papers on ME. The most recent one [2021], on specific epigenetic and gene expression signatures in people with ME, can be found here.

Session I–Long Covid: What Do We Know So Far?
Thursday, July 1, 2021 [Please click here for recording.]
Noon ET/9am PT

Dr. Nisreen Alwan 

Associate Professor of Public Health
University of Southampton; Long Covid Survivor

During the Covid-19 pandemic, Dr. Alwan contributed to the public health response by coordinating and leading several collective outputs from senior UK public health academics and focusing on the recognition and the quantification of morbidity from Covid-19. She was awarded a Most Excellent Order of the British Empire (MBE) for Services to Medicine and Public Health during the Covid-19 pandemic in the Queen’s New Year Honours 2021. She was named among other inspiring and influential women from around the world in the BBC 100 Women 2020 list.

Dr. Alwan obtained a membership in the Royal College of Physicians and earned an MPH at the University of Nottingham. She secured a Wellcome Trust Research Training Fellowship based at the University of Leeds and received an MSc in statistical epidemiology and a PhD in nutritional epidemiology.

Dr. Natalie Lambert

Associate Research Professor
Indiana University School of Medicine
Director of Research, SurvivorCorps

Dr. Lambert is an expert in Covid-19 patient symptoms and experiences. Her Covid-19 Health Lab works to understand the multitude of ways in which Covid-19 impacts patients’ health. The major focus of her lab is to 1) understand how underlying health factors affect Covid-19 health outcomes and 2) identify barriers patients experience when seeking out care for long-term or novel Covid-19 symptoms. Dr. Lambert utilizes large-scale natural language processing of data collected from online communities as well as surveys, interactive mapping and innovative health informatics techniques.

Dr. Lambert earned an MA and PhD from the University of Illinois and a BA from the University of Georgia.

Dr. Bhupesh Prusty
Principal Investigator
Institute for Virology and Immunobiology
University of Wurzburg

Prior to joining the University of Wurzburg, Dr. Prusty was a post-doctoral fellow at the German Cancer Research Institute. His accomplishments include receiving a Ramsay Grant from Solve M.E., the Koichi Yamanishi Young Investigator Award for Excellence in Basic Science and Best Trainee Award from the HHV-6 Foundation, the Shakuntala Amir Chand Prize from the Indian Council of Medical Research and the Science Writing Prize from the European Molecular Biology Organization.

Dr. Prusty’s current research explores how SARS-Cov-2 infection directly or indirectly reactivates latent viruses, like human herpes virus (HHV-6), which in turn attack the  nervous system and alter cells’ ability to produce energy.  

Dr. Prusty has a PhD in biosciences from Jamia Millia Islamia and an MSc and BA in zoology from Sambalpur University.